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X-ORIGINAL-URL:https://curerare.de
X-WR-CALDESC:Veranstaltungen für CureRare
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TZID:Europe/Berlin
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DTSTART:20230326T010000
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DTSTART:20231029T010000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20231031
DTEND;VALUE=DATE:20231103
DTSTAMP:20260624T000645
CREATED:20230418T132303Z
LAST-MODIFIED:20230526T100529Z
UID:1580-1698710400-1698969599@curerare.de
SUMMARY:World Orphan Drug Congress Europe 2023
DESCRIPTION:The World Orphan Drug Congress is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe. \nNow in its 14th annual edition\, the World Orphan Drug Congress Europe will continue to bring experts from the whole value chain under one roof\, where you get to meet decision makers in the areas that are most applicable for your business offering. \nWith 1000+ in attendance there will be extensive opportunities to network and learn more around the commercial and scientific issues in evidence generation\, regulation\, clinical trials\, market access\, pricing\, manufacturing\, gene therapy and precision medicine.
URL:https://curerare.de/event/world-orphan-drug-congress-europe-2023/
ATTACH;FMTTYPE=image/png:https://curerare.de/wp-content/uploads/2023/04/WODCE2023.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230927
DTEND;VALUE=DATE:20230929
DTSTAMP:20260624T000645
CREATED:20230418T132650Z
LAST-MODIFIED:20230526T094945Z
UID:1583-1695772800-1695945599@curerare.de
SUMMARY:3rd World Congress on  Rare Diseases & Orphan Drugs
DESCRIPTION:The 3rd World Congress on Rare Diseases & Orphan Drugs is a premier international event that brings together leading experts and researchers in the field of rare diseases and orphan drugs. The conference is scheduled to take place on September 27-28\, 2023\, in Amsterdam\, Netherlands\, and will focus on the theme „Rare diseases and precision medicine: opportunities and challenges.“ Rare diseases are defined as conditions that affect a small percentage of the population. There are more than 7\,000 rare diseases\, and they affect more than 400 million people worldwide. These diseases are often difficult to diagnose\, and treatments are scarce\, which is why they are often referred to as orphan diseases. Precision medicine is a rapidly evolving field that aims to provide personalized treatments based on an individual’s unique genetic makeup\, environment\, and lifestyle. Precision medicine holds great promise for rare diseases as it allows for more targeted and effective therapies. \nThe 3rd World Congress on Rare Diseases & Orphan Drugs will provide a platform for researchers\, clinicians\, patients\, and industry representatives to exchange ideas\, present the latest research\, and discuss the challenges and opportunities in the field. The conference will feature keynote speakers\, plenary sessions\, poster presentations\, and panel discussions. Attendees will have the opportunity to network with peers\, learn about the latest research and developments\, and contribute to the advancement of the field. \nAmsterdam\, the capital city of the Netherlands\, is a vibrant and multicultural city that is known for its rich history\, beautiful architecture\, and world-renowned museums. The city is easily accessible by air\, train\, and car\, making it an ideal location for an international conference. \nOverall\, the 3rd World Congress on Rare Diseases & Orphan Drugs promises to be an exciting and informative event that will advance our understanding of rare diseases and orphan drugs and pave the way for new and innovative treatments. \n 
URL:https://curerare.de/event/3rd-world-congress-on-rare-diseases-orphan-drugs/
LOCATION:Amsterdam
ATTACH;FMTTYPE=image/png:https://curerare.de/wp-content/uploads/2023/04/3rdCRDOD.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230913
DTEND;VALUE=DATE:20230915
DTSTAMP:20260624T000645
CREATED:20230418T133010Z
LAST-MODIFIED:20230526T095134Z
UID:1587-1694563200-1694735999@curerare.de
SUMMARY:Clinical Trials In Rare Diseases 2023
DESCRIPTION:This event will explore the challenges in clinical trials for orphan drugs and rare diseases\, bringing together clinical operations professionals from across multiple therapeutic areas to discuss common obstacles and solutions. We will explore the benefits of early planning and engagement with regulatory authorities\, the importance of working closely with patients and patient advocacy groups\, recruiting and retaining patients for rare disease studies\, and much more. \nCo-located with our brand new Clinical Data Management Innovation conference\, we will have sessions specifically on data management within rare disease settings\, how to make the most of limited data sets\, and how real world evidence can support data for your rare disease and orphan drug clinical trials.
URL:https://curerare.de/event/clinical-trials-in-rare-diseases-2023/
LOCATION:Princeton
ATTACH;FMTTYPE=image/png:https://curerare.de/wp-content/uploads/2023/04/arena-logo.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230710
DTEND;VALUE=DATE:20230714
DTSTAMP:20260624T000645
CREATED:20230418T123705Z
LAST-MODIFIED:20230526T100610Z
UID:1577-1688950800-1689209999@curerare.de
SUMMARY:Curating the Clinical Genome
DESCRIPTION:We are pleased to announce the 7th Curating the Clinical Genome conference\, which aims to bring together the international clinical genomics and biodata communities to discuss best practices for the clinical use of genomic data\, including variant interpretation\, clinical utility\, and the consensus generation of curated knowledge. \nThis event will be of interest to a wide group of medical genomics researchers\, clinicians and clinical scientists practicing genomic medicine\, companies developing solutions for clinical genomics and data scientists interested in genomic data sharing. \nThe sharing of genetic data from clinical diagnostic testing and the generation of consensus-curated knowledge is vital for delivering on the promise of genomic medicine. The growing recognition of the power of global data sharing has led to the establishment of major initiatives\, such as ClinGen and DECIPHER consortia\, which have spearheaded this conference series. The focus of this year’s meeting is to bring together these and other national/regional initiatives to develop common standards (guidelines and resources)\, share best practices\, integrate the recent research findings and help drive patient benefits. \nThis conference will be a hybrid meeting – with onsite or virtual attendance. The programme will also include short oral presentations selected from abstracts\, posters\, poster pitches and a panel discussion on iterative reporting where more panel members will be invited from the registered delegates. \n‘Clinical Application of MAVE Data’ workshop \nAfter the conference\, on the afternoon of 12 July\, a workshop will be jointly hosted by the scientific committee of the Curating the Clinical Genome and the Mutational Scanning Symposium to discuss the potential use of mutational scanning data in variant classification in clinical practice.
URL:https://curerare.de/event/curating-the-clinical-genome/
LOCATION:Hinxton
ATTACH;FMTTYPE=image/png:https://curerare.de/wp-content/uploads/2023/04/wcs.png
ORGANIZER;CN="Wellcome Connecting Science":MAILTO:https://www.wellcomeconnectingscience.org/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230424
DTEND;VALUE=DATE:20230428
DTSTAMP:20260624T000645
CREATED:20230418T122006Z
LAST-MODIFIED:20230526T095357Z
UID:1573-1682298000-1682557199@curerare.de
SUMMARY:Genomics of Rare Disease
DESCRIPTION:Cutting-edge genomic science and rare disease clinical medicine\nOur 17th conference on rare diseases will discuss the latest findings in genetic mechanisms of disease and will highlight advances in therapeutic approaches. \nThis meeting provides an excellent multi-disciplinary forum for clinicians\, research and clinical scientists\, and bioinformaticians interested in recent advances in genomics and understanding the impact on the care of patients with rare diseases. \nThis year’s conference will focus on the genomic basis of rare diseases\, and will explore new technologies and ‘omics’ approaches in rare disease research. Strategies for translating advances into clinical care and opportunities to implement genomic medicine into healthcare systems will be discussed. Potential approaches to preventing rare disease\, and whether prevention should be the goal\, will also be explored. \nThe programme will include invited talks\, oral presentations selected from abstracts\, posters\, poster pitches\, and networking opportunities for a highly interactive meeting. This conference will be a hybrid meeting – with onsite or virtual attendance.
URL:https://curerare.de/event/genomics-of-rare-disease/
LOCATION:Hinxton
ORGANIZER;CN="Wellcome Connecting Science":MAILTO:https://www.wellcomeconnectingscience.org/
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